I posted this on Facebook earlier this afternoon. It felt like the best way that I could contribute as an American on the eve of Election Day: Anger is insidious. My mental health has only been able to improve this year because I turned down the volume on...
Shawn Decker
It’s Alive! A Recent Trip and a Trip Down Memory Lane
The return of the living blog! Sort of. I tried to get some #HorrorFeast action going on here, but some travel plans disrupted the writing flow and my collection of real life horror stories and fantasy fiction was unrealized. I even packed the laptop away for the four...
From Reactive to Proactive (new article for RareDisease.Net)
“I am minimizing the scope of what is a minor risk, physically, and what is not. And it’s been revolutionary.”
Monster Squad Goals
One of my favorite movies is the 1987 cult classic, The Monster Squad. On Monday at the Alamo in Charlottesville, I’ll be seeing it on the big screen for the third time. Squad stars André Gower and Ryan Lambert will be there, too, answering questions about the not...
Do Not or Donut? Not As Easy As You Think…
Over the last year and a half I've been able to write about living with hemophilia for Rare Disease dot net. Starting the once-a-week prophy treatments has certainly given me more to write about. I'm actually having to temper my reaction to how good it's been. One...
Patience Zero Problemo
I had the horrific thought last night that my Octoberfeast series might be short-lived, like the first victim in the horror movie that says, "We'll cover more ground if we split up." In keeping with my overall, in-house wellness policy of leaning into fear as opposed...
Octoberfeast Your Eyes On… OCTOBERFEAST
October is here! The Spooky Season has always had a special kind of magic. The cool kick-off to the Fall line-up of spectacular classics. Halloween to Thanksgiving to Christmas. When I was a baby being baptized on Halloween, my brain hadn't grown to the required size...
What Song Will You Sing Today?
Yesterday I had a routine appointment with my hematologist. A follow-up appointment, if I'm really going to dial this in for you. You see, on July 4th I declared my independence from absurdly low amounts of clotting factor by beginning a once-a-week self infusion via...
A Day With HIV
Diagnosed at age 11, I've lived many of my days with HIV... At 49 I am thankful for the advancements in HIV treatment that have allowed me to far outlive my prognosis. I wear my AIDS Memorial t-shirt to let the spirits know- and their loved ones- that they are not...
I’m a One Stick Wonder
My dream as a musician is to, someday, be a one-hit wonder. I'm on a bit of a hiatus on the local music scene right now because, well, all of that shit is too exhausting. The brand-enhancing and public-facing escapism required to cloak what is a very vulnerable craft...