Over the last year and a half I've been able to write about living with hemophilia for Rare Disease dot net. Starting the once-a-week prophy treatments has certainly given me more to write about. I'm actually having to temper my reaction to how good it's been. One...
Yesterday I had a routine appointment with my hematologist. A follow-up appointment, if I'm really going to dial this in for you. You see, on July 4th I declared my independence from absurdly low amounts of clotting factor by beginning a once-a-week self infusion via...
My dream as a musician is to, someday, be a one-hit wonder. I'm on a bit of a hiatus on the local music scene right now because, well, all of that shit is too exhausting. The brand-enhancing and public-facing escapism required to cloak what is a very vulnerable craft...
Last month Gwenn and I had the privilege of speaking about HIV education and prevention on Al Jazeera's The Stream, representing sero-discordant couples. Annie Lennox and activists from around the world were on hand to discuss the need for continued funding of HIV...
Before I die... before I die I want to experience something I never have: life without hemophilia. I had a decade without HIV, and I'd like to enjoy as many years as possible on the tail end of this journey without it as well. As I stood in front of this wall in...
This month's issue of POZ Magazine is all about long-term survivors. And this year marks a special occasion in my own long-term journey as a positoid... 25 years ago, I met my favorite band, Depeche Mode, thanks to the Make-A-Wish Foundation. Back in 1990, the...
25 years ago I met Depeche Mode. I was 14. Diagnosed with HIV for three years- but living with it for at least five years at that point- I was already past my expiration date according to my initial prognosis. When Ryan White passed in 1990, my mom was confronted with...
This year Friday the 13th and Valentine's Day ended up back-to-back. Which, considering how masochistic the emotion of love can be, seems quite appropriate. But, without love, I'm pretty sure I wouldn't be here. I'm going to write a list of a few of my Loves and, if...
Me with Andy, Tony and Gopal of Bella Morte moments after the show (photo by Angel Miranda) At the Infusion Center at UVA, about a week after the show. (photo by Gwenn) So the big show on August 3 with my friends went well... very well! It was unbelievable how...
Tomorrow night I'll be playing a Synthetic Division show, opening for my friends in Bella Morte. Another talented musician and friend, Lauren Hoffman, will also be playing. The venue is the 800-capacity venue, The Jefferson. It's a big gig. But for me, it's more than...