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Absurd Bleeds Related To Living With Hemophilia

Absurd Bleeds Related To Living With Hemophilia

My latest musings on Rare Disease about some of the unforgettable bumps and bruises that have occurred as a result of hemophilia. I really love that there is an illustration for each of the three horror/humor stories! https://raredisease.net/living/absurd-mishaps...

Absurd Bleeds Related To Living With Hemophilia

Brain Drain, ADHD And HIV

For a long time one of my biggest fears about living with HIV has been the effects on the brain. Several years ago I leaned into that, which unexpectedly led to a diagnosis of ADHD after some testing. It's understandable how something like Attention Deficit Disorder...

Absurd Bleeds Related To Living With Hemophilia

The Back-To-School Special About Disclosure

With school starting up again, I decided to take the opportunity to discuss one of the biggest hurdles for people living with HIV: disclosure. For many years, I never thought I'd even openly discuss HIV. I'm thankful that, when I was ready, I was in a safe space to do...

Dedicated To Garth McMurray

Dedicated To Garth McMurray

Had a ton of fun writing my recent article for Rare Disease, inspired by the What If series of Marvel comics. https://raredisease.net/living/what-if I'm retroactively dedicating this one to Garth McMurray. Garth was avid comic book fan and artist that we recently...

Absurd Bleeds Related To Living With Hemophilia

My Rare Disease Journey With Hemophilia

Most of my "medical resume" musings from the patient perspective have been about living with HIV. That's why I am excited to be contributing to RareDisease.Net, where I'll be sharing thoughts on a lifetime of lessons living with a bleeding disorder (Hemophilia A). My...

Traveling During COVID

Traveling During COVID

This month I got on a plane for the first time since the COVID-19 pandemic started. In the twenty-four years since we've been together, this is the longest stretch that Gwenn and I have been "grounded". And I was okay with it. Okay with being grounded for a bit. Okay...