The last five years or so, my average t-cell count has been around 600. In January, before the Covid-19 lockdown, my count was 635. I'm more than thrilled with that because, paired with my consistently undetectable viral load, it's a sign that my...
Medical
Anyone Else Missing More Doses of HIV Meds?
Since I started taking HIV medications in 1999, I've been very good at not missing any doses. Even during my extended period of week on/week off (2003-ish to 2013-ish), I was diligent about remembering which day was the start day for another week of pills....
30 Years to a Functional Cure?
I followed an internet wormhole to an article that suggested a functional cure could be up to 30 years away. At or least that was the thought of some know-it-all scientist who painstakingly analyzed all of the recent data on emerging treatment options... but what does...
Got My Brain Checked Out
A few years ago I was scheduled to get the inner workings of my brain checked out. I'm not sure what lead to the scheduling of the appointment, perhaps I confided in my doctor that I felt particularly forgetful or just not with it mentally. What I do remember is that,...
Limping Into 2015, Literally
"To survive in this world, sometimes you must have the eye of the over-sized domesticated cat." - me My last blog post was on December 4th- I was ending the year of 2014 in arguably the prime of my life: confidant and wearing a moustache for the first time, standing...
My Hep Story
When people think of my medical conditions there tends to be a pecking order... HIV gets top-billing, then hemophilia (raise your voices, my fellow thinbloods!)... and at the end of the line is poor ol' hepatitis. Hep allowed me to share my story about how hepatitis...
Side Effects- To Change Meds or Not To Change?
Overall, I was happy with the results of my latest labwork. My t-cell count was good and my viral load was undetectable. And since last June, when I started on my paired down daily regimen of Prezista (800 mg) and Norvir (100 mg), I've felt pretty good: a lot less of...
Adventures in HIV Medication Part 2: The Lab Results
I posted a blog entry in late July about my decision to switch from week on/week off treatment of HIV to a continuous regimen that consisted of a lower dose of HIV medication. Well, this week I got my 6-weeks-in lab results and....There's good news and bad news.The...
Post-Show Attack of the Hemophilia!
Me with Andy, Tony and Gopal of Bella Morte moments after the show (photo by Angel Miranda) At the Infusion Center at UVA, about a week after the show. (photo by Gwenn) So the big show on August 3 with my friends went well... very well! It was unbelievable how...
New Adventures in HIV Medication
In 2002 I made a decision regarding my HIV medications- I'd been on combination therapy for 3 years after receiving an AIDS diagnosis in 1999, and the HIV medication most certainly brought my health back. But at the same time, I was feeling the side effects and was...