“I am minimizing the scope of what is a minor risk, physically, and what is not. And it’s been revolutionary.”
Medical
Patience Zero Problemo
I had the horrific thought last night that my Octoberfeast series might be short-lived, like the first victim in the horror movie that says, "We'll cover more ground if we split up." In keeping with my overall, in-house wellness policy of leaning into fear as opposed...
What Song Will You Sing Today?
Yesterday I had a routine appointment with my hematologist. A follow-up appointment, if I'm really going to dial this in for you. You see, on July 4th I declared my independence from absurdly low amounts of clotting factor by beginning a once-a-week self infusion via...
Absurd Bleeds Related To Living With Hemophilia
My latest musings on Rare Disease about some of the unforgettable bumps and bruises that have occurred as a result of hemophilia. I really love that there is an illustration for each of the three horror/humor stories! https://raredisease.net/living/absurd-mishaps...
Dedicated To Garth McMurray
Had a ton of fun writing my recent article for Rare Disease, inspired by the What If series of Marvel comics. https://raredisease.net/living/what-if I'm retroactively dedicating this one to Garth McMurray. Garth was avid comic book fan and artist that we recently...
Traveling During COVID
This month I got on a plane for the first time since the COVID-19 pandemic started. In the twenty-four years since we've been together, this is the longest stretch that Gwenn and I have been "grounded". And I was okay with it. Okay with being grounded for a bit. Okay...
The Importance of HIV/STD Testing
A lot of times when people delay getting tested for HIV and STDs, it is because of the stigma. Or simply not wanting to know the actual answer to a question that your brain cannot seem to turn off. But the reasons for knowing your status should trump your fears,...
Why I Lied To Get a Booster Shot
Last month I went into a Costco and received a booster shot for my Johnson & Johnson vaccine, which I received in March. I travelled about two hours for that first shot in March, because information was trickling in slowly with regard to when the vaccine would be...
Pretty Sure I Got COVID This Past Summer…
On July 5th I wrote a blog entry about getting sick. I was careful not to assume it was COVID-19. I even took an at home test that came back negative. Admittedly, I didn't take the second test. You see, the kit comes with two and encourages you take both. Guess I...
A Bloody Good Time on World Hemophilia Day
This World Hemophilia Day I thought it would be fun to share some whimsical blood-lettings of days past... having four-and-a-half decades of life with hemophilia under my belt, I've certainly seen my fair share of my own plasma. So without further ado,...