A Month of Superheroes: Ryan White
August 18, 2015
Today marks the 25th anniversary of the Ryan White CARE Act. This federal program has provided so many services to the HIV/AIDS community. Much thanks goes to Ryan White, who passed to spirit in 1990, and his mother Jeanne for their role in changing the way people viewed HIV.
Ryan White’s legacy lives on to this day. I still remember the days when I was a scared kid with HIV, intensely secretive about my status. Ryan’s journey was quite public from the beginning of his diagnosis, and my mother had every magazine that interviewed him and would watch his TV appearances, where he did his best to disarm fears of HIV transmission.
Here are some videos I’ve made about Ryan. And a POZ article I wrote a five years ago about the CARE Act.
Ryan White’s bedroom is on display at the Children’s Museum in Indianapolis. Here’s a brief tour, a video by me followed by a video by Andrea, curator of the Museum:
I animated this video for AIDS Healthcare Foundation, which explains The Ryan White CARE Act and a little bit of Ryan’s history:
Trying to Win Daniel Tosh’s (Tosh.O) Car
March 19, 2014
On a recent episode of Tosh.O, Daniel issued a challenge to viewers: prove you are better than he is by doing something incredible. Record it and send it in for a chance to win his car. (A 2011 Subaru Outback with around 25,000 miles on it.)
I can never resist the call of a great challenge as well as the opportunity to upgrade my 2004 Subaru Outback (150,000 miles). So here’s my 30-second bid for the car showcasing a few of my incredible skills.
Hope you enjoy it and that you are doing incredible things today.
Support the Ryan White Care Act
August 26, 2013
Last month I did a video for AIDS Healthcare Foundation about PEPFAR. This month I was once again excited by the topic they presented- the need for continued funding of the Ryan White CARE Act.
Learn more about it by watching the video above. For your convenience, I’ve posted the transcript of the video below.
Hope this finds you well!
In 1984, 13-year-old Ryan White changed the face of AIDS by speaking out
against intolerance. Following his death in 1990, the Ryan White CARE
(Comprehensive AIDS Resources Emergency) Act received vast bipartisan
support and today is the backbone of our fight against HIV/AIDS in the
United States, providing lifesaving treatment and prevention services to
nearly half of all people living with HIV nationwide.
In September 2013, the CARE Act is set to expire. In the four years since
its last reauthorization, we have learned that the key to reversing the
HIV epidemic begins with getting tested for HIV, followed by linkage and
retention of care. This ultimately renders patients noninfectious,
allowing for a longer, happier life. Sounds good, right?
Sadly, gaps in this continuum leave a majority of HIV-positive Americans out of
care: 20% don’t know their status, and of those who do only 40% see a
doctor regularly, leaving less than 30% of HIV-positive people in
America with an undetectable viral load. In July 2013, President Barack
Obama issued an Executive Order for federal agencies to scale up their
Reauthorizing the Ryan White CARE Act is critical to
achieving this goal. Providers like Medicaid and private insurance do
not cover many needed services and do not have the HIV expertise of the
CARE Act to provide everyone with the same level of care.
Keep Ryan’s legacy alive — show Congress that America supports the reauthorization of the Ryan White CARE Act.
What is PEPFAR? (Video)
July 24, 2013
I had the privilege of helping out AIDS Healthcare Foundation with this video on the importance of funding PEPFAR (the President’s Emergency Plan For AIDS Relief). Check out the video, and please go to Change AIDS Obama and sign the Change.org petition.
Watch the epic battle between PEPFAR and AIDS, and help in the fight!
Hope this finds you well!
AIDS Is Going To Lose To Love (Our Video!)
November 1, 2012
Here is the link to our short video about why Gwenn and I think AIDS is going to lose. The video was made for a contest by Chevron AIDS: “AIDS is Going to Lose to Love” by Shawn and Gwenn
Visiting the AID Quilt (Video)
July 24, 2012
Of everything available at this years International AIDS Conference, nothing quite compares with a visit to the AIDS Quilt. I heard that there was a great effort to get the AIDS Quilt on display in DC. It would have a great injustice to all who have passed and all who have honored their loved ones with a panel if it had not been there.
Here’s a video I shot on the Mall.
I Victory Crouch You by Synthetic Division (Halo Tribute)
October 12, 2011
Did you hear the story last month about how a group of gamers solved a problem with HIV that has been baffling scientists for over a decade? Click here to learn more about how a University of Washington program transforms scientific problems into computer games.
I, on the other hand, use gaming for less noble purposes. Inspired by the insane amount of time I’ve logged on Halo in the last year, I decided to pay tribute with a Synthetic Division song and music video. The song was co-written with one of my good friends, Micah Consylman. We got together, had a beer, and took turns pecking away at a synthesizer and laying down vocals. Though it’s not discovering the elusive structure of a retrovirus protein, I believe “I Victory Crouch You” is more than a song inspired by an act that is perpetrated on fallen opponents in the game. I think this song will have a reverse effect, and eventually inspire scientists to find a cure for HIV so I can dedicate every waking moment of my life to playing video games.
MOCHA MADNESS: The Official HD Movie Embed
September 19, 2011
Alright, short and sweet. This is a 22-minute Blair Witch Project-esque movie that Josh and I made while on the road. Had fun doing it! It has a shocking ending, but one shocking aspect I noticed when editing the footage is that I never once state my HIV status.
Maybe in the sequel?