Shaking the Disease: An Unlikely Tribute to Depeche Mode
November 19, 2015
This month’s issue of POZ Magazine is all about long-term survivors. And this year marks a special occasion in my own long-term journey as a positoid…
25 years ago, I met my favorite band, Depeche Mode, thanks to the Make-A-Wish Foundation. Back in 1990, the prognosis wasn’t good. But I’ve been fortunate- I had access to great medical care when I got really sick in 1999, and HIV medications not only bailed me out of a scary health situation, but they have afforded me a level of health I never thought possible. So I wanted to do something special this year as a way of giving thanks: record a Depeche Mode cover album. And do it to raise money for my friends at the MTV Staying Alive Foundation, who provide grants to youth-based HIV prevention efforts around the world.
Every little bit helps!
If you’re interested in helping out, you can purchase the Limited-Edition CD at my music site (Synthetic-Division.com) for $25. Only 120 will be available for purchase. On December 1st, World AIDS Day, the album will be on iTunes.
A Month of Superheroes: Charles Sanchez and Team Merce
September 4, 2015
This week saw the big finale of the 8 episode original HIV comedic web series, Merce. I was so intrigued when I first heard about Merce last year, via an Indiegogo campaign – could a comedic story centered around a guy living in NYC work? I believed. I donated. I blogged about it.
And Charles Sanchez and the incredibly talented team at Merce delivered. Big time.
I sat down with Charles Sanchez, he at his computer in New York and me at mine in Virginia, to see how he was feeling after accomplishing such a lofty goal with style.
Are you happy with the response to Merce? Any surprising reactions (good, bad, indifferent)?
For the most part, we’ve gotten nothing but positive feedback. Even
people that were apprehensive at the idea of an HIV+ musical comedy,
once they watched an episode or two, were hooked, and find the show
charming and hilarious and wonderful.
have only been two negative comments on our videos, and to both of them
I responded as Merce would and just said, “Thanks for watching and have
a super day!”
would love if every episode had a famous HIV+ person in it, like you,
Mark S. King, Peter Staley, Greg Louganis, Mondo Guerro, Jack
Mackenroth, dreamy Andrew Sullivan and the like. And I’m not sure what
I’d have those people do, but I’d hope that they’d be willing to have a
ball and dance sparkly dances with us! I wonder if Magic Johnson can sing?
We’re still reeling from season 1! But my producing partner Tyne Firmin
and I have talked about what season 2 might look like, and it’s a
definite possibility, perhaps next year. Merce‘s message of
living life with joy and humor and love is and important one, and the
more we can get his silliness out into the world, the better. Soon after
my HIV diagnosis almost 12 years ago, I was told that stress and worry
are some of the worst things for the health of us pozzers, as you call
us (I adore that, by the way). The opposite of stress and worry is joy
and lightness, and that’s what I try to convey with Merce. It’s also how I try to live my life, by choosing joy.
A Month of Superheroes: Georgia Arnold/MTV Staying Alive
August 25, 2015
Georgia, Gwenn and me in 2010
Georgia Arnold is the Executive Director of the MTV Staying Alive Foundation, which fights HIV globally by funding youth-led programs. Over the last few years I’ve been fortunate to see what they can accomplish firsthand, since I’m on the SAF Board. (Full disclosure- I help good people help good people!)
Now, Georgia would be quick to say the grantees who put in the grassroots work in their communities are the heroes. And, well, who could argue with her? Meet the heroes of Staying Alive that protect their communities with innovative HIV education efforts tailored to their own communities needs.
The team that keeps things moving at Staying Alive are incredible. And the tireless efforts of Georgia are an integral part of what makes the foundation so effective. I’m proud to call Georgia a hero in the fight against HIV, but most importantly I’m honored to call her a friend, too.
Keep up with Georgia’s travels and MTV Staying Alive by joining their email list. (They won’t bombard you, about one email a month)
Merce- Original HIV Comedy Series!
July 28, 2015
Now that 40 has sunk in, and I have recovered from my birthday festivities, I wanted to post an entry about one of my favorite new things: Merce! It’s so over-the-top campy and kind-hearted, with a story that is centered around the middle-aged Merce, an HIV positive man living in New York City.
The episodes are short, funny and inspired. And I’m so happy to see a web series focused on a lead character living in today’s American world with HIV. Well done, Team Merce!
For those of you who haven’t checked it out yet, here’s the first two episodes below.
The first episode debuted two weeks ago, and in it the title character, Merce, who is living with HIV in New York City, goes on a date…
In episode two, Merce has a doctor’s appointment. Harboring a not-so-subtle crush on his own personal McDreamy, Merce is disappointed when his doctor suggests that he start working out.
Looking forward to seeing what adventures lie ahead for wide-eyed Merce!
Stephen Gendin, 15 Years Later
July 19, 2015
(This blog post was originally published on August 1, 2010. Today marks 15 years since Stephen passed. – SD)
Ten years ago I was getting a few emails from a friend about a special party for a positoid pal who “wasn’t doing too well”. But I couldn’t imagine the Stephen I knew- blue, red, green hair and all- as anything less than vibrant, and at the time, I was wiped out from my own failing health and starting on HIV meds. A trip to NYC just seemed exhausting, I was in no mood to party so I didn’t go…
Six months later, Stephen was dead. And I was in NYC for a funeral. I was heartbroken.
One of the first openly HIV positive people I met, Stephen Gendin offered me a job at his HIV prescription mail order service, prompting a short-lived (uh, 3 weeks I believe) move to NYC that made me realize for the first time in my life that I was operating on very low levels of energy thanks to HIV. It was a tough pill to swallow. One night, as I told my boss and friend that I was packing my bags and heading back to Virginia to focus on my blog and sleeping schedule, he told me there was another way.
He asked if I ever thought about starting on HIV medications.
Stephen’s hope for survival rested in the advent of new medications. He was a longtime activist, the get-in-the-street and get arrested kind, the kind that are embedded in the AIDS community’s history and identity as being responsible letting drug companies and the feds know that people were dying. He’d signed up for drug trials, used his own body to further research, and was always looking for the next miracle drug.
As we sat on the steps of the old Poz office in the West Village that night in 1996 one of us was hopeful, the other scared shitless about all these new medications. In the field of hemophilia treatment, miracle drugs were the reason why I had hep B, C and HIV. The reason why I was tucking tail as the going got tough. I didn’t make a big deal about how I became infected, and looking back I don’t think I could articulate my fears about the HIV medications even as I was showing the first signs that I needed them.
To his credit, Stephen kindly accepted my resignation and refusal to give the pills a try. He was deeply confused why a 21-year old would choose to return to small town Virginia when he could start meds, get some energy, and pursue a new life in the city. But he was a friend, he said his peace and let me go in peace- it was a beautiful moment I’ll never forget, probably the defining moment of our friendship.
Most of my memories of Stephen are at Poz, which he helped found, or at his former company Community Prescription Service- the entire staff comprised of people living with HIV. I recall tooling around together at a few Poz Life Expos (where the picture above was taken) and I’m glad I kept in touch with him after I left NYC, embarrassed by my lack of staying power at the job he’d so kindly presented to me.
In 1999 when I decided to start medications after my failing health left me with no alternative, I let Stephen know, and he never said or implied that he told me so. He just told me how happy he was for me on all fronts, most excited of which was the fact that my new girlfriend, Gwenn, had recently moved in with me.
Looking back, I envied Stephen’s easy style, and was honored by his friendship and how he showed me that HIV–and people living with it–could be cool as hell. I miss ya buddy, a few years was not enough to know you, but I’m glad I got them. You were, and will always be, a huge influence on this little positoid’s life.
To learn more about Stephen Gendin, check out Poz Magazine’s October 2000 memorial issue of the magazine in Stephen’s honor.
Also, check out photos from the 10-year memorial gathering in his honor.
MTV’s RE:DEFINE Rocks Dallas and HIV
April 13, 2015
Full dislosure- I’m a big mark for the MTV Staying Alive Foundation. They fund grants worldwide to provide young people with the tools and resources necessary to implement HIV prevention plans in their communities. You can learn more about them here.
The Staying Alive Foundation’s continued existence is dependent on public funding, and this past weekend, along with their partners at The Goss-Michael Foundation, they raised over $2 million at the annual RE:DEFINE fundraiser in Dallas. Georgia Arnold, executive director, shared some photos on her Instagram account (which I cobbled together below!)… enjoy!
Big thanks to everyone who helped make the event a success, including artist Brian Kokoska, whose work was available in the art auction. And Julie Allen, who conceived the idea for RE:DEFINE.
Up next on MTV Staying Alive’s fundraising calendar? Found in London on May 14, with performances by Tinie Tempah and Tallia Storm.
Ryan White, 25 Years
April 8, 2015
Ryan White passed to spirit on this day 25 years ago- he was 18 years old, yet in that short time he educated millions of people worldwide about how HIV was and wasn’t transmitted. Born with hemophilia, Ryan contracted HIV through his blood product treatments in the 1980s, when screening methods were haphazard at best. After being kicked out of his school, he and his mother waged a very serious and public campaign against HIV and ignorance.
Ryan, to put it bluntly, was a rockstar.
I know the impact he had on my family- my mom saw him as a third son of sorts, following his medical ups and downs in the media. I emotionally distanced myself from him when he was alive, mainly because his story hit a little too close to home for me… hemophilia, HIV, getting kicked out of school- I never thought I would go public with the kind of details that he never blinked an eye in sharing.
At 20, when I found my own educational voice, I allowed myself to feel that connection with Ryan White that was always there. I was immensely proud of the path that Ryan had paved- and saw the need, six years after he passed, for the work to continue. It sounds kooky, and a lot of factors play into these kinds of things, but I give him a nod and a fistbump for introducing me to Gwenn, my partner of 16 years now. We met at a talk given by his mother in 1998… I always think Ryan somehow positioned us to be there, standing in line waiting to talk to his mom, close enough to notice one another…
Of course, my personal life would never be the same. And my proudest- and most effective- work as an educator has been with Gwenn, standing together as a couple in a healthy relationship.
Thanks, Ryan. You are never forgotten.
Cash for the Stache? Let’s Rock AIDS!!
December 4, 2014
You’ve seen the moustache… and more of me than you intended to this week… and, well, the time has come… so let’s harness the full power of Freddie Mercury together!
The fundraising drive for MTV Staying Alive is live- from now through Saturday you can make a minimum donation of $8 (MTV Staying Alive and the Big Give fund drive is based in London- so a £5.00 donation roughly equates to $8.) Your donation goes towards helping young people fight HIV in their communities around the world. But it also does much more.
For each dollar, Durex will supply 5 free condoms for young educators- meaning that your minimum donation of $8 (£ 5.00) would provide 40 condoms!
What will happen regardless of whether the donation gets doubled? You’ll help vital prevention programs get funded. HIV is a complex problem, but proven strategies combined with a creative approach work in minimizing risk for HIV transmission… and MTV Staying Alive has an incredible track record.
So let’s do this! Join me in making a donation today… or I’ll post more pictures of me in the shower with this moustache. And yes, the drapes do match the curtains. Don’t make me prove it.
We Are All Queen,