A Month of Superheroes: Georgia Arnold/MTV Staying Alive

August 25, 2015


Georgia, Gwenn and me in 2010

Georgia Arnold is the Executive Director of the MTV Staying Alive Foundation, which fights HIV globally by funding youth-led programs. Over the last few years I’ve been fortunate to see what they can accomplish firsthand, since I’m on the SAF Board. (Full disclosure- I help good people help good people!)

Now, Georgia would be quick to say the grantees who put in the grassroots work in their communities are the heroes. And, well, who could argue with her? Meet the heroes of Staying Alive that protect their communities with innovative HIV education efforts tailored to their own communities needs.

The team that keeps things moving at Staying Alive are incredible. And the tireless efforts of Georgia are an integral part of what makes the foundation so effective. I’m proud to call Georgia a hero in the fight against HIV, but most importantly I’m honored to call her a friend, too.

Keep up with Georgia’s travels and MTV Staying Alive by joining their email list. (They won’t bombard you, about one email a month)

Positively Yours,
Shawn

My blog post about how I learned about the MTV Staying Alive Foundation, from March 2010.

A Month of Superheroes: Ryan White

August 18, 2015

Today marks the 25th anniversary of the Ryan White CARE Act. This federal program has provided so many services to the HIV/AIDS community. Much thanks goes to Ryan White, who passed to spirit in 1990, and his mother Jeanne for their role in changing the way people viewed HIV.

Ryan White’s legacy lives on to this day. I still remember the days when I was a scared kid with HIV, intensely secretive about my status. Ryan’s journey was quite public from the beginning of his diagnosis, and my mother had every magazine that interviewed him and would watch his TV appearances, where he did his best to disarm fears of HIV transmission.

Here are some videos I’ve made about Ryan. And a POZ article I wrote a five years ago about the CARE Act.

Ryan White’s bedroom is on display at the Children’s Museum in Indianapolis. Here’s a brief tour, a video by me followed by a video by Andrea, curator of the Museum:


I animated this video for AIDS Healthcare Foundation, which explains The Ryan White CARE Act and a little bit of Ryan’s history:

Positively Yours,
Shawn

A Month of Superheroes: John Oliver

August 17, 2015

The new issue of POZ is out, entitled “Suppression Superheroes”. You can check it out by clicking here.

Inspired by this issue, I want to spend the next month highlighting some folks who I deem to be superheroes among us. They’ll range from people I’ve met in flesh in blood, to people who I’ve merely observed in the stars from my lowly terrestrial perch.

First up is John Oliver. I’ve been a fan of his since his first appearances as a correspondent on The Daily Show. But my appreciation for John grew beyond his talents as a comedian when he donated his talents to an HIV/AIDS fundraiser (AIDS Walk NY) that my friends and I were participating in 2007 and 2008.

Here’s Gwenn fanning out as she introduces John in 2007:

On his HBO show, “Last Week with John Oliver”, John has incorporated the issue of clean needles into a children’s song, and also tackled the issue of sex education in America’s public schools. Check out his take on sex ed below:

What makes John Oliver a superhero to me is his common sense, the uncommon ability to use his comedic skills to open hearts to difficult topics and his empathy for man and womankind.

Positively Yours,
Shawn

Merce- Original HIV Comedy Series!

July 28, 2015

Now that 40 has sunk in, and I have recovered from my birthday festivities, I wanted to post an entry about one of my favorite new things: Merce! It’s so over-the-top campy and kind-hearted, with a story that is centered around the middle-aged Merce, an HIV positive man living in New York City.

The episodes are short, funny and inspired. And I’m so happy to see a web series focused on a lead character living in today’s American world with HIV. Well done, Team Merce!

For those of you who haven’t checked it out yet, here’s the first two episodes below.

The first episode debuted two weeks ago, and in it the title character, Merce, who is living with HIV in New York City, goes on a date…

Episode 1: MERCE “Tonight at Eight” from MerceTV on Vimeo.

In episode two, Merce has a doctor’s appointment. Harboring a not-so-subtle crush on his own personal McDreamy, Merce is disappointed when his doctor suggests that he start working out.

Looking forward to seeing what adventures lie ahead for wide-eyed Merce!

Positively Yours,
Shawn

Until There’s a Cure… There’s The Cure

February 16, 2015

This year Friday the 13th and Valentine’s Day ended up back-to-back. Which, considering how masochistic the emotion of love can be, seems quite appropriate. But, without love, I’m pretty sure I wouldn’t be here. I’m going to write a list of a few of my Loves and, if mine inspires, then take a moment to reflect on your own.

In some particular order….

MUSIC

From meeting Depeche Mode through the Make-A-Wish Foundation in 1990, to learning how to write my own songs as Synthetic Division, music has been a pillar in my life. Last year, I started playing keyboards for my friend, Alethea, in her band Ships in the Night. Most recently, I had the chance to sing on Friday the 13th, when my friends in Bella Morte and The Secret Storm played a show. The opening band, A University of Whales, invited me up to sing “Close to Me” by The Cure. “Until there’s a cure… there’s The Cure!” (Garth McMurray’s brilliant phrasing.)
 

Sweets 

I’ve always had a sweet tooth. These days it manifests in my daily iced mocha, but the love has been there as long as I can remember. I get the argument that sugar is a drug and we consume far too much of it, even unknowingly. I’m more conscious of that the older I get. And I’m not certain, but before HIV meds were an option, I’m pretty sure that massive Slurpee consumption helped stave off my pet virus…

Videogames
I still remember my first system, the Atari 2600. And my first game, Berkerk. And I still play to this day. A few years ago, me and my friends even designed little red ribbons for emblems on World AIDS Day…. before going into Halo and mock-killing everything in our path. But it was the thought that counts. And I think about videogames a lot.

Pro Wrestling
They call it sports entertainment. But it’s pro wrestling, and it has been my soap opera for a long time. These days I lament that I’m not writing the storylines. It’s an imaginative world, and when it’s fun, there’s nothing like it. Now that I’m older, I do worry about the head trauma and future health of the performers… at times that does take away a bit of the fun. Ah, why does the real world have to invade our fantasy realms? (Read my POZ column about interviewing my all-time fave, Ric Flair.)

Ex-Girlfriends
I’ve been fortunate- I haven’t had a relationship end badly. Well, in high school it’s the only way they can end sometimes. But I’ve never had any real lingering resentment for someone who I’ve had a relationship with. Now, I’m glad for every step along the way, from the first peck on the lips in the 6th on… you grow with each experience, and learn a lot about yourself through the eyes of someone who loves you.

Family
My family has always been supportive. I know a lot of people don’t have the luxury of this, and how heavy that can weigh… my medical experiences (and smartass attitude) really put my mom, dad and brother to the test. And they’ve always passed with flying colors.

Gwenn
I’m lucky to have such a loving partner. We’ve been together 16 years, and in that time we’ve dealt with a lot of highs and lows. But the lows are just the things that life throws at you- and it’s so much easier to deal with that when you have someone to lean on. And a shoulder to offer in return.

Of course, there are many more things that I consider loves- but I hope you enjoyed this little peek into some of things that make me tick.

Positively Yours,
Shawn

Cash for the Stache? Let’s Rock AIDS!!

December 4, 2014

shawnbiggiveFBprofilepic.jpg

You’ve seen the moustache… and more of me than you intended to this week… and, well, the time has come… so let’s harness the full power of Freddie Mercury together!

The fundraising drive for MTV Staying Alive is live- from now through Saturday you can make a minimum donation of $8 (MTV Staying Alive and the Big Give fund drive is based in London- so a £5.00 donation roughly equates to $8.) Your donation goes towards helping young people fight HIV in their communities around the world. But it also does much more.

For each dollar, Durex will supply 5 free condoms for young educators- meaning that your minimum donation of $8 (£ 5.00) would provide 40 condoms!

What will happen regardless of whether the donation gets doubled?
You’ll help vital prevention programs get funded. HIV is a complex problem, but proven strategies combined with a creative approach work in minimizing risk for HIV transmission… and MTV Staying Alive has an incredible track record.

So let’s do this! Join me in making a donation today… or I’ll post more pictures of me in the shower with this moustache. And yes, the drapes do match the curtains. Don’t make me prove it.

We Are All Queen,
Shawn

 

wearequeensing.jpg click pic to donate!

Pedro Zamora, Half A Lifetime Ago

November 11, 2014

Today marks 20 years since Pedro Zamora passed. That’s half my lifetime ago, but the loss still resonates with me because of Pedro’s influence on my life and my work as an educator. His relationship with Sean Sasser on MTV’s Real World showed me that a loving, healthy relationship with HIV was possible. Pedro’s roommates reactions to his status were mixed in the beginning, but the solid friendships that grew (particularly with Judd Winick) made me realize how cool my friends would probably be if I ever spoke about HIV.

See, half my lifetime ago, when I “met” Pedro through his appearance on my television, I was a year and a half away from talking about my HIV status. At that time, in 1994, I’d spent pretty close to half my lifetime living with HIV… yet I’d never openly discussed my status, only when backed into a corner by my parents or at a doctor’s appointment. Or when someone ratted me out to a girlfriend.

Pedro showed me that you can disclose on your terms. That HIV can just be an extension of who you are. If someone has a problem with your status, it’s not your fault it’s their ignorance that is the reason for the uneasiness.

His educational style was more straightforward and less laid back than the one that I would adopt after I spoke out; but in the pre-protease era, that’s how you needed to reach people. I loved watching him educate on The Real World, then simply live his private life in public as he fell in love with Sean Sasser and shared laughs with Judd and his other roommates over silly, mundane things.

As I was watching from my parent’s house where I was living at the time, my now-partner, Gwenn, was also tuning in. Her thoughts on Pedro:

“I remember watching the San Francisco season of the Real World between
my freshman and sophomore year of college at my friend’s house each
week. When I went back to school that fall I also remember the day that
Pedro Zamora passed. It was very soon after that I heard a young woman
speak at my school who was HIV positive and that is where my journey to
becoming an activist began. It’s been 20 years today since Pedro’s death
and although I didn’t know it at the time it was the precursor to my
work.”

When Pedro passed in the fall of 1994- the same day that the last episode of his season of the Real World aired, I was devastated. All of my fears of my own mortality, which I’d mistakenly thought I’d come to terms with, bubbled up. Throughout Pedro’s journey, I was making baby steps towards a future I didn’t think was for me: being open about my HIV status. But after he died I just wanted to go back to never thinking about HIV again, and I hated it for taking my new hero so abruptly.

Ironically, Pedro was a hero I couldn’t even say was my hero: half my lifetime ago I was still so quiet about my HIV status.

A year after his passing, there was a Real World Reunion. Judd, Puck, Pam, Sean and the rest of the cast were there. Everyone except Pedro. Judd teared up and asked viewers to “do something” about HIV, anything. It was a desperate plea not only for himself, still grief-stricken, but also a call to arms that his friend, Pedro, would have given had he been there. I was in a lingering depression, one that would last a couple more months- 1994 had been tough, I lost pop culture heroes in Pedro and Kurt Cobain and was also blindsided by a hepatitis C diagnosis.

At the beginning of 1996, I was ready to answer Judd’s call. I posted a website, outing my status once and for all. I began to hone my craft as a writer and develop an educational style that, like Pedro’s, was just an extension of who I was.

And now it’s a half a lifetime later. Pedro’s not here in the physical sense, but his influence has stayed with me over the years. I have the love and the life I dreamed of when I was watching him and learning about his life; a journey he unselfishly shared.

I’ll never forget the doors he helped to open up for me in my own journey.

Positively Yours,
Shawn

Ethan Zohn: Cancer and World Cup Survivor

July 10, 2014

Soccer is the most popular sport in the world. But in the United States it’s a polarizing topic of discussion, not unlike the issue of abortion, Michael Bay reboots and fanny packs at theme parks. (They’re practical, y’all.)  This summer, I’ve come down with Soccer Fever.  Not since the World Cup in 1994 have I been so into the sport.

I wanted to talk about the World Cup, so I went to the only former soccer pro I know: Ethan Zohn. A co-founder of Grassroot Soccer, canzer crusher and Survivor Africa winner shares his thoughts on HIV, this year’s World Cup tournament and what it means to truly survive life. (NOTE: Ethan’s answers submitted before the Semi-Final matches between Brazil/Germany and The Netherlands/Argentina. He knows his shit.)

ethanzohnnohate.jpg

So, I gotta know, Ethan: do you have any favorites in the World Cup?

Of course I do, I live for World Cup. I have been to every World Cup since 1994. Before the cup, I felt Brazil would crush everyone. But now, I’m leaning towards an Argentina / Germany final with Argentina winning. Plus I love yelling out the name Schweinsteiger at random moments throughout the day.
What’s up with that dude who bit the other dude?

That dude is Suarez, probably one of the best players in the world. To be honest I think he in love with Giorgio Chiellini. That was a love bite, not a foul. Plus Uraguay, where Suarez is from is the first country to regulate legal production, sale and consumption of marijuana. What do you expect?

I’d expect a more chill Suarez, but I’ve known people who freak out on the pot… a friend of mine… someone I know quite personally. He becomes a panicky mess… anyway…

After winning Survivor, you used the prize money to found Grassroot Soccer and help utilize the world’s love of soccer in the fight against HIV.  Several years later, you were diagnosed with cancer. I know you didn’t found Grassroot to gain cosmic favor, but… you getting cancer after going to bat, er, going to kick ball for the HIV community, was one of the lamest fouls I’ve ever seen in the sport of life. How are you feeling these days?

Ha! True, I need to have a word with the referee of this game of my life…who is that? God? David Hasselhoff?

I’m feeling great and excited I’m alive and strong enough to drink beer and watch soccer all month. In the years leading up to my cancer diagnosis I have been working hard through Grassroot Soccer, to help prevent young kids in Africa from contracting this life threatening disease. I do not know what it is like to have HIV, nor do I have HIV.  But, I do know what it’s like to walk into an office and get handed a very scary life ending diagnosis. Getting cancer gave me some street cred. Now I just want to do everything in my power to make sure others do not have to go through the same crap we went through. Can I get a “hell yeah”….

Hell yeah!  Lastly, any big goals for Grassroot Soccer during this World Cup season, or any of your other charitable efforts?

Where do I begin!  We always have cool events and fundraising campaigns. Right now, WHEATIES (the iconic cereal that always has amazing athletes on their boxes) is running a contest #WheatiesNext – 5 up-and-coming athletes in a voting contest for who gets on the next box. Each picks a charity to benefit.

Our newest Pro Ambassador, Christen Press, is in the contest and we are her charity – this is a big contest and we are one of the 5 chosen charities – woo-hoo! Check it out here:

Thanks, Ethan!  Enjoy the rest of the World Cup. And the beer, you’ve earned it!

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